Projects

The CELESTIAL study is a cohort study using data linkage to compare people with end stage kidney disease (ESKD) and living kidney donors versus the general population. The datasets of people with ESKD, living kidney donors in Australia and New Zealand, and the Australians and… Read More »CELESTIAL – Cause of death for living kidney donors and people with end stage kidney disease, in Australia and New Zealand; a data linkage study

The ASSET project aims to use data linkage of existing health and administrative data in New Zealand, to create a platform for investigating issues of equity in delivery of health services for kidney transplantation. We are interested in investigating the impact of social determinants of… Read More »ASSET – AcceSS and Equity in Transplantation

The Organ Referral Characterisation Database (ORCHARD) study was established in collaboration with the NSW Organ and Tissue Donation Service (OTDS), and the NSW Transplant Advisory Committee in 2010 to describe trends in organ donor referrals. This study is a retrospective clinical audit of all patients… Read More »ORCHARD – the Organ Referral CHARacterisation Database

The Safety and biovigilance in organ donation (SAFEBOD) Public Health Register draws together health records from all people considered as organ donors, all actual donors and all organs recipients in NSW. SAFEBOD was conceived by the CODE team and created as a Public Health Register,… Read More »SAFEBOD – the SAFEty and Biovigilance in Organ Donation Public Health Register

MODUS is a new project starting in 2020 and has been funded by an NHMRC partnership grant. The CODE team’s partners in the MODUS study are the NSW Ministry of Health, Kidney Health Australia, and the NSW Organ and Tissue Donation Service. MODUS will develop… Read More »MODUS – Maximising Organ Donor offer Utility System-wide

The SIGNPOST study will commence in 2020. SIGNPOST aims to test a new way of incorporating the values and preferences of people waiting for a kidney transplant into the donor decision-making process. Currently, patient values and preferences are entirely excluded from the organ donor procurement… Read More »SIGNPOST – Sharing and InteGratiNg Patient perspectives on Organ Selection for Transplantation

The CODE team bring together data from different sources and context to better understand benefits and harms of the organ donation and transplantation process. Currently we have several projects in progress aiming to synthesise exisiting evidence to support CODE activities, to facilitate strategic direction of… Read More »Synthesising Evidence to Support Decision Making