ANZIPTR is a clinical quality registry reporting on islet and pancreas transplant activity for Australia and New Zealand. ANZIPTR is based at Westmead Hospital in New South Wales. Data are collected, and collated, to generate reports to guide service delivery and to monitor donor and… Read More »ANZIPTR – Australian and New Zealand Islet and Pancreas Transplant Registry
See SHE-ROCKS Publications here SHE-ROCKS is a collaborative project between CODE at the University of Sydney and researchers at the University of Glasgow, and is supported by a University of Sydney- University of Glasgow Partnership Collaboration Award 2022. We know females have poorer outcomes than… Read More »SHE-ROCKS – Sex and Health; Evaluating diagnosis, Risk factOrs and Complications in chronic Kidney disease
The Mental Health Living Longer (MHLL) programme established a population-wide data linkage to support research translation and service reform for mental health in New South Wales (NSW), Australia (learn more about it here: Mental Health Living Longer (MHLL) protocol ). In partnership with the MHLL… Read More »ASSET NSW- AcceSS and Equity in Kidney Disease and Transplantation: impact of severe and persistent mental illness, New South Wales
The I-MAGICK study uses data linkage to evaluate the health service delivery for people with advanced chronic kidney disease (CKD) affected by multimorbidity, including cardiovascular disease and mental health conditions. We are developing evidence to improve equitable delivery of health care and services, including cardiovascular… Read More »I-MAGICK – Improving health MAnaGement In people with advanced Chronic Kidney disease
Relative survival provides a more reliable measure of excess mortality for people diagnosed with cancer. In the general population with cancer, the relative survival has increased to 68% in 2009-13 but estimates for the kidney failure and kidney transplant population with cancer are unknown. ReSKiTE… Read More »ReSKiTE – Relative Survival from cancer in Kidney Transplant recipients and people with End-stage kidney disease in Australia and New Zealand
See CELESTIAL Publications here The CELESTIAL study is a cohort study using data linkage to compare people with end stage kidney disease (ESKD) and living kidney donors versus the general population. The datasets of people with ESKD, living kidney donors in Australia and New Zealand,… Read More »CELESTIAL – Cause of death for living kidney donors and people with end stage kidney disease, in Australia and New Zealand; a data linkage study
The ASSET project aims to use data linkage of existing health and administrative data in New Zealand, to create a platform for investigating issues of equity in delivery of health services for kidney transplantation. We are interested in investigating the impact of social determinants of… Read More »ASSET NZ – AcceSS and Equity in Transplantation, New Zealand
See ORCHARD Publications here The Organ Referral Characterisation Database (ORCHARD) study was established in collaboration with the NSW Organ and Tissue Donation Service (OTDS), and the NSW Transplant Advisory Committee in 2010 to describe trends in organ donor referrals. This study is a retrospective clinical… Read More »ORCHARD – the Organ Referral CHARacterisation Database
See SAFEBOD Publications here The Safety and biovigilance in organ donation (SAFEBOD) Public Health Register draws together health records from all people considered as organ donors, all actual donors and all organs recipients in NSW. SAFEBOD was conceived by the CODE team and created as… Read More »SAFEBOD – the SAFEty and Biovigilance in Organ Donation Public Health Register
See MODUS Publications here MODUS is a new project starting in 2020 and has been funded by an NHMRC partnership grant. The CODE team’s partners in the MODUS study are the NSW Ministry of Health, Kidney Health Australia, and the NSW Organ and Tissue Donation… Read More »MODUS – Maximising Organ Donor offer Utility System-wide